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Cavernoma Alliance UK blog

Sharing information and experiences

Posted by fjgent Cavernoma UK

7 Mar 2012

4 comments

I'm trying hard to get this started. So far I've shared lots of stuff via facebook and email, now I'll try this. I've noticed that over the past few months much more sharing has happened, and for many people this has been really helpful.

4 comments

gwynne

8 May 2012

I was diagnosed with cavernoma 14th march 2012 . I had a bleed and it affected my speach. I saw a consultan at the queens hospital and i don't need surgery and will right its self. Thats all good but i'm still vague and would love to hear from other suffers ( i'm female)

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fjgent Cavernoma UK

8 May 2012

Hiya! Have you been in touch with Ian Stuart info@cavernoma.org.uk ? He's incredibly helpful and supportive.

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